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#DuchennovaMišičnaDistrofija
Delo 3w

The parents of little Tea are reacting to the ZZZS's refusal to finance his treatment abroad, pointing out that the boy can only receive gene therapy as long as he is still walking, while ZZZS claims that the effectiveness of the drug is not sufficiently proven and states that treatment in Slovenia has not yet been exhausted. (translated)

Starši malega Tea so se odzvali na zavrnitev ZZZS za zdravljenje v tujini
Delo May 31

Inovativno zdravilo givinostat je bilo konec maja 2026 uvrščeno na pozitivno listo zdravil v Sloveniji, kar omogoča otrokom z Duchennovo mišično distrofijo (DMD) dostop do pomembne terapije, ki lahko upočasni napredovanje bolezni, če jo prejmejo pravočasno. #DuchennovaMišičnaDistrofija #inovativnoZdravilo #Slovenija

Inovativno zdravilo givinostat za otroke z DMD