A government, wasting hundreds of millions of euro, had to be embarrassed by campaigners into providing life saving medicine for people with Friedreich’s Ataxia. https://t.co/C0zWYzSAms #FriedreichsAtaxia #HealthcareJustice #PatientAdvocacy #Thetweetdoesnotmentionanyspecificcountries.Therefore #therearenocountrycodestoreturn.
The Friedreich’s Ataxia decision needs to be revisited. These people are desperately seeking funding for life saving medication. The government are wasting hundreds of millions of euro and yet they can't find the money for these Irish citizens. https://t.co/V7zrSQwXKz #FriedreichsAtaxia #FundingForHealth #IrishCitizens #IE
Time is ticking for children with rare diseases in Ireland. We know for example that Skyclarys is the only drug that has been shown to slow Friedreich's ataxia, and it's available in other European countries. https://t.co/lE921QPkB4 #RareDiseases #FriedreichsAtaxia #HealthcareEquality #IE #EU
There is no pause in the progress of Friedreich’s Ataxia. Every delay has real consequences for people and their families. Enough delays. End the wait. https://t.co/G2HcMQE6Ks #FriedreichsAtaxia #EndTheWait #PatientAdvocacy #Nocountrycodesarementionedinthetweet.
