Gustavo Petro recounted that he learned about the case of Luciana García when he was president and that, according to him, doctors had predicted she had less than six months to live. He stated that the girl was born with Wolman syndrome, an orphan disease, and that only 27 people had survived it until then. Petro said that he called the EPS and the clinic where Luciana had been hospitalized since she was 15 days old to arrange for medication and specialized food that, according to him, the entity was reluctant to cover due to its cost. He added that, three days later, the girl received care and a coordination began with doctors from Spain and the United Kingdom. He also mentioned that he prayed for her and that Luciana had greeted him from the incubator. According to Petro, the disease involves the absence of an enzyme called lysosomal acid lipase and, without treatment, can cause malnutrition. He indicated that managing the condition cost 160 million pesos per month and that Luciana was already one year old when he visited her. He said he hoped the EPS would not abandon her and attributed her survival, in part, to the efforts he made during his government. #MilagroMédico #DerechosHumanos #SaludInfantil (translated)
