The article discusses how the inequality in the care of patients with rare diseases, such as Dravet syndrome, mainly falls on mothers, affecting their professional and personal lives, and emphasizes the need for greater equity and recognition in family responsibilities. #CuidadoFamiliar #EnfermedadesRaras #EquidadDeGénero (translated)
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'Cuando el cuidado se comparte, la familia respira mejor', sobre la desigualdad al cuidar en enfermedades raras
