The author stated that Ms. Monika had contacted him repeatedly, and therefore he published the story of her daughter. He requested any support, such as sharing or financial contributions, and wrote that he does not understand why the treatment is not covered by insurance. According to him, the girl suffered from an ultra-rare progressive neurodegenerative disease called NCL-7. https://t.co/utDmdkgvpG #podpora #NCL7 #příběh #CZ (translated)
