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#SkyCL

Me lo sentivo. Un segno del destino. Lo Special One con il grande Real Madrid che ritrova squadre italiane dove ha lasciato il segno. Ricordi indelebili. Inter e Roma. Inter al Bernabeu e Roma all'Olimpico. Un enorme piacere ritrovarlo. Special One. #SkyCL 🔥🔥 https://t.co/qLLUQ4W48J #RealMadrid #SpecialOne #Calcio

WUNDER VON LINZ! Der @LASK_Official​ schlägt @CelticFC​ mit 5:1 nach Verlängerung und spielt ab Herbst erstmals in der Champions League! 🇦🇹👏 #SkyCL 👉 https://t.co/5v9wq6tvCc https://t.co/wzBnyYLgaV #ChampionsLeague #LASK #Football

HSE approves Skyclarys reimbursement. This is a significant win for the patients, the families & the campaign. It wouldn't have happened unless citizens stood up for themselves. The gov need to get their priorities right in future. https://t.co/1QeH8yVpqw #Skyclarys #PatientAdvocacy #HealthPolicy #Nospecificcountrycodesarementionedinthetweet.

I welcome today’s decision of the HSE Senior Management Team to recommend the use of Skyclarys, and the Government will fully support this decision. https://t.co/3ZbmoEsXSe #Skyclarys #HSE #Healthcare #Therearenospecificcountriesmentionedinthetweet.

We need urgent movement on Skyclarys and the other orphan drugs that have not been approved in our system. We need a pharmaceutical sector that functions in the public interest, instead of for profits! #Skyclarys #OrphanDrugs #PublicHealth #Nospecificcountrycodescanbeidentifiedfromthetweet.

Time is ticking for children with rare diseases in Ireland. We know for example that Skyclarys is the only drug that has been shown to slow Friedreich's ataxia, and it's available in other European countries. https://t.co/lE921QPkB4 #RareDiseases #FriedreichsAtaxia #HealthcareEquality #IE #EU

Aktuality.sk Apr 9

Léčba Friedreichovy ataxie, Skyclarys, byla schválena a od června 2024 bude hrazená ze zdravotního pojištění. Mladý pacient Lukáš Hrošovský, který dosud čelil hrozbě brzkého úmrtí, nyní žije v naději na lepší kvalitu života. Cesta však nekončí. #FriedreichovaAtaxie #Skyclarys #očesku

Kým pacienti čakali na rozhodnutie ministerstva, niektorí zomreli. Po dvoch rokoch schválili liek na zriedkavú chorobu